Summary: Research Participants Protection Modernization Act of 2011 - Amends the Public Health Service Act to require all human subject research conducted or supported by the Department of Health and Human Services (HHS) or otherwise subject to HHS regulation to be conducted in accordance with HHS Human Subject Regulations and, if applicable, the vulnerable-population rules. Requires all human subject research on drugs or biological products to be conducted in accordance with Food and Drug Administration (FDA) regulations and, if applicable, the vulnerable populations rule. Requires the Secretary of HHS to make assistance available to any federal department or agency seeking to: (1) improve the regulation or oversight of human subject research, or (2) apply the HHS Human Subject Regulations or the vulnerable populations rules. Requires the Secretary to determine whether any HHS Human Subject Regulations should be modified after considering specified matters, including financial conflicts of interest. Sets forth notification requirements for investigators submitting a proposal for human subject research to an institutional review board, including regarding any significant financial interest. Requires the institution served by an institutional review board to review such significant financial interests and seek to eliminate or manage any conflict of interest. Prohibits the Secretary from awarding a grant, cooperative agreement, or contract to a public entity or private academic institution for research unless the entity or institution maintains or contracts for a program to educate investigators and board members on the protection of human subjects in research. Codifies the establishment of the Office for Human Research Protections in the Office of Secretary of HHS. Authorizes the Director of such Office to make grants for the development of model education programs that may be used by institutions served by institutional review boards to promote best practices in institutional management of human subject research.

research participants protection modernization act amends public_health_service_act require human subject research conducted supported department_of_health_and_human_services hhs subject hhs regulation conducted accordance hhs human subject regulations applicable vulnerable population rules requires human subject research drugs biological products conducted accordance food_and_drug_administration fda regulations applicable vulnerable populations rule requires secretary hhs assistance available federal department agency seeking improve regulation oversight human subject research apply hhs human subject regulations vulnerable populations rules requires secretary determine hhs human subject regulations modified considering specified matters including financial conflicts interest sets forth notification requirements investigators submitting proposal human subject research institutional review board including significant financial interest requires institution served institutional review board review significant financial interests seek eliminate manage conflict interest prohibits secretary awarding grant cooperative agreement contract public entity private academic institution research entity institution maintains contracts program educate investigators board members protection human subjects research codifies establishment office human research protections office secretary hhs authorizes director office grants development model education programs institutions served institutional review boards promote best practices institutional management human subject research


Summary: Life Sciences Jobs and Investment Act of 2011 - Amends the Internal Revenue Code to allow: (1) an increased research tax credit for qualified initial life sciences research expenses; and (2) certain corporations a tax deduction for dividends received which are reinvested solely in the United States to hire scientists and researchers engaged in life science research, fund life science research at research consortia, eligible small businesses, universities, and federal laboratories, or build or lease new facilities to be used primarily for qualified life sciences research. Terminates such tax incentives after 2016. Defines "qualified initial life sciences research expenses" as amounts, up to $150 million, attributable to the study of biology, biochemistry, biophysics, bioengineering, microbiology, genetics, or physiology, but excluding sociology or psychology. Directs the Commissioner of Internal Revenue to take necessary steps to ensure full compliance with the provisions of this Act and to report to Congress on the status of such compliance and related enforcement.

life sciences jobs investment act amends_the_internal_revenue_code allow increased research tax credit qualified initial life sciences research expenses certain corporations tax deduction dividends received reinvested solely united_states hire scientists researchers engaged life science research fund life science research research consortia eligible small businesses universities federal laboratories build lease new facilities primarily qualified life sciences research terminates tax incentives defines qualified initial life sciences research expenses amounts million attributable study biology excluding psychology directs commissioner internal_revenue necessary steps ensure compliance provisions act report congress status compliance related enforcement


Summary: Trisomy 21 Research Centers of Excellence of 2011- Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development, to expand and intensify NIH programs with respect to research and related activities concerning Down syndrome. Requires the Director of NIH to publish a research plan on Down syndrome and update it every five years or as appropriate. Requires the Director of NIH to award grants and contracts to public or nonprofit private entities to pay all or part of the cost of planning, establishing, improving, and providing basic operating support for centers of excellence regarding translational research on Down syndrome. Sets forth requirements for such centers, which shall include: (1) contributing to a comprehensive research portfolio for Down syndrome, (2) having a primary focus on Down syndrome, (3) providing an optimal venue and infrastructure for patient-oriented research, and (4) conducting basic, clinical, and translational research on Down syndrome in specified areas. Authorizes the Director of NIH to establish a Down Syndrome Consortium to facilitate the exchange of information and to make the research effort on Down syndrome more efficient and effective.

research centers_of_excellence amends public_health_service_act require director national_institutes_of_health nih acting director eunice kennedy shriver national institute child health human development expand intensify nih programs respect research related activities concerning syndrome requires director nih publish research plan syndrome update years appropriate requires director nih award grants contracts public nonprofit private entities pay cost planning establishing improving providing basic operating support centers_of_excellence translational research syndrome sets forth requirements centers shall include contributing comprehensive research portfolio syndrome having primary focus syndrome providing optimal venue infrastructure patient oriented research conducting basic clinical translational research syndrome specified areas authorizes director nih establish syndrome consortium facilitate exchange information research effort syndrome efficient effective


Summary: Trisomy 21 Research Resource Act of 2011 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development, to expand and intensify NIH programs with respect to research and related activities concerning Down syndrome. Requires the Director of NIH to publish a research plan on Down syndrome and update it every five years or as appropriate. Authorizes the Director of NIH to: (1) conduct basic, clinical, and translational research on Down syndrome; (2) award a grant or contract for a registry of individuals with Down syndrome; (3) establish a database including the names, contact information, and each medical condition of individuals with Down syndrome; and (4) expand one or more tissue banks maintained or supported by NIH to identify any tissue harvested from a tissue donor with Down syndrome. Requires consent before including an individual's information in the registry, the database, or the tissue bank. Authorizes the Director of NIH to provide for the participation of NIH agencies in a consortium to facilitate the exchange of information and to make the research effort on Down syndrome more efficient and effective by ensuring consistent communication, minimizing duplication of effort, and integrating the varied perspectives of partner agencies, organizations, and individuals. Authorizes the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) award grants and cooperative agreements for the collection, analysis, and reporting of data on Down syndrome; and (2) carry out epidemiological activities regarding Down syndrome.

research resource act amends public_health_service_act require director national_institutes_of_health nih acting director eunice kennedy shriver national institute child health human development expand intensify nih programs respect research related activities concerning syndrome requires director nih publish research plan syndrome update years appropriate authorizes director nih conduct basic clinical translational research syndrome award grant contract registry individuals syndrome establish database including names contact information medical condition individuals syndrome expand tissue banks maintained supported nih identify tissue harvested tissue donor syndrome requires consent including individual information registry database tissue bank authorizes director nih provide participation nih agencies consortium facilitate exchange information research effort syndrome efficient effective ensuring consistent communication minimizing duplication effort integrating varied perspectives partner agencies organizations individuals authorizes secretary acting director centers_for_disease_control_and_prevention cdc award grants cooperative agreements collection analysis reporting data syndrome carry epidemiological activities syndrome


Summary: Patients First Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services to conduct and support basic and applied research to develop techniques for the isolation, derivation, production, testing, and human clinical use of stem cells that may result in improved understanding of, or treatments for, diseases and other adverse health conditions, including pluripotent stem cells that have the flexibility of embryonic stem cells (whether or not such pluripotent stem cells have an embryonic source), provided that such techniques will not involve: (1) the creation of a human embryo for research purposes; (2) the destruction or discarding of, or risk of injury to, a living human embryo; or (3) the use of any stem cell the derivation or provision of which would be inconsistent with this Act. Requires the Secretary to issue guidelines implementing this Act to ensure that any research (including any clinical trial) supported under this Act: (1) is clearly consistent with the standards established in this Act, if conducted using human cells; and (2) is prioritized in terms of potential for near-term clinical benefit in human patients.Requires the Secretary to report on peer reviewed stem cell research proposals that were not funded.

patients act amends public_health_service_act require secretary health_and_human_services conduct support basic applied research develop techniques isolation production testing human clinical use stem cells result improved understanding treatments diseases adverse health conditions including stem cells flexibility stem cells stem cells source provided techniques involve creation human embryo research purposes destruction risk injury living human embryo use stem cell provision inconsistent act requires secretary issue guidelines implementing act ensure research including clinical trial supported act clearly consistent standards established act conducted human cells prioritized terms potential near term clinical benefit human patients requires secretary report peer reviewed stem cell research proposals funded


Summary: Medical Checklist Act of 2011 - Requires the Director of the Agency for Healthcare Research and Quality, acting through the Center for Quality Improvement and Patient Safety, to conduct research and a study regarding the development and efficacy of medical checklists, including regarding: (1) the testing of different models of medical checklists; (2) an examination of checklist development and use in other industries; and (3) a measurement of the effects of the use of medical checklists on patient safety and health outcomes. Requires dissemination of the results of such study to patient safety organizations. Defines "medical checklist" as a predetermined, evidence-based, well-defined set of steps that should be completed during a designated medical clinical encounter or medical procedure. Requires the HIT Policy Committee to develop policy recommendations regarding: (1) the extent to which the use of medical checklists should be incorporated into health information technology systems; and (2) measures to determine the effectiveness of such use. Requires the Secretary to enter into an agreement with the Institute of Medicine and the National Academy of Engineering of the National Academies to conduct a study on medical checklists that includes: (1) a review of available medical checklists and similar quality improvement techniques; (2) an identification of areas of research needed to improve medical checklists; (3) an analysis of organizational impediments to the adoption and use of medical checklists; and (4) a determination of whether the availability of an increased number of medical checklists would improve patient safety and health outcomes.

medical checklist act requires director agency healthcare_research_and_quality acting center quality improvement patient safety conduct research study development efficacy medical checklists including testing different models medical checklists examination checklist development use industries measurement effects use medical checklists patient safety health outcomes requires dissemination results study patient safety organizations defines medical checklist predetermined evidence based defined set steps completed designated medical clinical encounter medical procedure requires hit policy committee develop policy recommendations extent use medical checklists incorporated health information technology systems measures determine effectiveness use requires secretary enter agreement institute_of_medicine national_academy_of_engineering national academies conduct study medical checklists includes review available medical checklists similar quality improvement techniques identification areas research needed improve medical checklists analysis organizational impediments adoption use medical checklists determination availability increased number medical checklists improve patient safety health outcomes


Summary: Taxpayers' Cancer Research Funding Act of 2011 - Amends the Internal Revenue Code to allow taxpayers to designate on their tax returns a $5 contribution to the Breast and Prostate Cancer Research Fund ($10 for joint returns). Establishes in the Treasury the Breast and Prostate Cancer Research Fund to award grants for breast or prostate cancer research.

taxpayers cancer research funding act amends_the_internal_revenue_code allow taxpayers designate tax returns contribution breast prostate cancer research fund joint returns establishes treasury breast prostate cancer research fund award grants breast prostate cancer research


Summary: Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate NIH programs and activities regarding Tourette syndrome. Requires the Director to develop a system to collect data on Tourette syndrome, including epidemiological information regarding its incidence and prevalence in the United States, primary data, and data on the availability of medical and social services for individuals with Tourette syndrome and their families. Requires the Director to award grants and contracts to public or nonprofit private entities to pay costs of planning, establishing, improving, and providing basic operating support for between four and six centers of excellence in different regions of the United States to conduct basic and clinical research on Tourette syndrome. Requires the Secretary to designate a portion of the amounts made available to carry out NIH programs and activities for a fiscal year to carry out programs and activities with respect to Tourette syndrome.

collaborative academic research efforts syndrome act amends public_health_service_act require director national_institutes_of_health nih expand intensify coordinate nih programs activities syndrome requires director develop system collect data syndrome including epidemiological information incidence prevalence united_states primary data data availability medical social_services individuals syndrome families requires director award grants contracts public nonprofit private entities pay costs planning establishing improving providing basic operating support centers_of_excellence different regions united_states conduct basic clinical research syndrome requires secretary designate portion amounts available carry nih programs activities fiscal year carry programs activities respect syndrome


Summary: Repeals provisions of the Patient Protection and Affordable Care Act and the Internal Revenue Code, and rescinds all unobligated funds, that provide for the establishment and funding of the Patient-Centered Outcomes Research Institute to identify priorities for, and establish, update, and carry out, a national comparative outcomes research project agenda, as well as that provide for the dissemination of the research findings published by the Institute and other government-funded research that are relevant to comparative clinical effectiveness research. Rescinds all remaining unobligated balances available to the Agency for Healthcare Research and Quality for purposes of comparative effectiveness research. Requires the total amount rescinded by this Act to be deposited in the Treasury to pay down the national debt.

repeals provisions patient_protection affordable care act internal_revenue_code rescinds unobligated funds provide establishment funding patient centered outcomes research institute identify priorities establish update carry national comparative outcomes research project agenda provide dissemination research findings published institute government funded research relevant comparative clinical effectiveness research rescinds remaining unobligated balances available agency healthcare_research_and_quality purposes comparative effectiveness research requires total rescinded act deposited treasury pay national debt


Summary: Neuromyelitis Optica Consortium Act - Expresses the sense of Congress that there is a need to: (1) establish and coordinate a multicenter research effort to comprehensively study the causes of neuromyelitis optica (NMO) and identify potential biomarkers; and (2) encourage a collaborative effort among academic medical centers with epidemiological study groups to investigate environmental, nutritional, and genetic factors with respect to, and the pathological and epidemiological characteristics of, NMO. Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), in coordination with the Director of the National Institute on Minority Health and Health Disparities, to establish, administer, and coordinate a National Neuromyelitis Optica Consortium to: (1) provide five-year grants to eligible consortia to conduct research regarding the causes of, and the risk factors and biomarkers associated with, NMO; (2) assemble a panel of experts to provide guidance and recommendations for the development of a common study design, standard methods for collecting a minimum data set from study participants, specific analytical methods for examining data, provisions for consensus review of enrolled cases, and an integrated data collection network; and (3) designate a central laboratory to collect, analyze, and aggregate data with respect to funded research and to make such data and analysis available to researchers. Requires a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities, serving a designated catchment area), to be eligible for a grant, to demonstrate that: (1) it has the capability to enroll as research participants a minimum of 25 individuals with a diagnosis of NMO from the consortium's designated catchment area, and (2) such area does not overlap with the designated catchment area of another consortium already receiving a grant under this Act.

consortium act expresses sense congress need establish coordinate research effort comprehensively study causes identify potential biomarkers encourage collaborative effort academic medical centers epidemiological study groups investigate environmental nutritional genetic factors respect pathological epidemiological characteristics amends public_health_service_act require director national_institutes_of_health nih coordination director national institute minority health health disparities establish administer coordinate national consortium provide year grants eligible consortia conduct research causes risk factors biomarkers associated assemble panel experts provide guidance recommendations development common study design standard methods collecting minimum data set study participants specific analytical methods examining data provisions consensus review enrolled cases integrated data collection network designate central laboratory collect analyze aggregate data respect funded research data analysis available researchers requires consortium partnership universities health_care organizations government agencies combination entities serving designated area eligible grant demonstrate capability enroll research participants minimum individuals diagnosis consortium designated area area overlap designated area consortium receiving grant act


Summary: Armed Forces Breast Cancer Research Act of 2012 - Directs the Secretaries of Defense and Veterans Affairs to jointly conduct a study on the incidence of breast cancer among members of the Armed Forces and veterans and report study results to Congress.

armed_forces breast cancer research_act directs secretaries_of_defense veterans_affairs jointly conduct study incidence breast cancer members armed_forces veterans report study results congress


Summary: Melanoma Research Act of 2012 - Establishes the Skin Cancer Research Fund, into which amounts received from taxes on indoor tanning services shall be deposited and from which amounts shall be available exclusively for National Institutes of Health (NIH) research relating to skin cancer.

research_act establishes skin cancer research fund amounts received taxes indoor tanning services shall deposited amounts shall available exclusively national_institutes_of_health nih research relating skin cancer


Summary: Veterans Medical and Prosthetic Research Supplemental Appropriations Act, 2012 - Makes supplemental appropriations to the Department of Veterans Affairs (VA) for FY2012 for medical and prosthetic research within the Veterans Health Administration. Rescinds an identical amount from unobligated funds for the Department of Defense Base Closure Account 2005 under the Consolidated Appropriations Act, 2012.

veterans medical prosthetic research supplemental appropriations act makes supplemental appropriations department_of_veterans_affairs fy2012 medical prosthetic research veterans_health_administration rescinds identical unobligated funds department_of_defense_base_closure_account consolidated_appropriations_act


Summary: Cure for AIDS Act of 2012 - Directs the Secretary of Defense (DOD), through the Congressionally Directed Medical Research Program, to establish and support an accelerated research program dedicated to discovering a cure for HIV/AIDS. Instructs the Secretary to collaborate with the Director of the National Institutes of Health (NIH), the Director of the National Institute of Allergy and Infectious Diseases, and other appropriate federal agencies. Requires the Secretary to: (1) ensure that such research is highly targeted, (2) coordinate with at least one eligible nonprofit entity, and (3) ensure that the responsibilities of the non-profit entity include partnering with the Secretary in establishing research priorities.

cure aids act directs secretary defense dod congressionally directed medical research program establish support accelerated research program dedicated discovering cure hiv aids instructs secretary collaborate director national_institutes_of_health nih director national_institute_of_allergy_and_infectious_diseases appropriate federal agencies requires secretary ensure research highly targeted coordinate eligible nonprofit entity ensure responsibilities non profit entity include partnering secretary establishing research priorities


Summary: Trial and Experimental Studies Transparency Act of 2012 or TEST Act - Amends the Public Health Service Act to expand the clinical trials that must be reported to the clinical trial registry data bank to include: (1) any interventional study of a drug, device, or biological product conducted outside of the United States the results of which are submitted to the Secretary of Health and Human Services (HHS) as support for approval of an application; and (2) postmarket surveillance of a class II or class III device that involves data collection from human subjects. Defines "interventional study" to mean a study in human beings in which individuals are assigned by an investigator, based on a protocol, to receive specific interventions to evaluate their effects on biomedical health-related outcomes. Requires submission to the data bank of supporting documents, including protocol documents and consent documents used to enroll subjects into the trial. Requires the responsible party for a clinical trial to submit clinical trial information to the data bank before the first patient is enrolled in the trial. Requires the Director of the National Institutes of Health (NIH) to post the information submitted to the data bank within 30 days after the submission is determined to meet the quality criteria established by the Director. Revises time frames for the reporting of results data to the clinical trial registry. Requires the Director and the Commissioner of Food and Drugs (FDA) to report on the number of clinical trials with information submitted to the registry and steps taken to enforce compliance with such reporting requirements.

trial experimental studies transparency_act test act_-_amends public_health_service_act expand clinical trials reported clinical trial registry data bank include study drug device biological product conducted outside united_states results submitted secretary health_and_human_services hhs support approval application postmarket surveillance class class iii device involves data collection human subjects defines study mean study human individuals assigned investigator based protocol receive specific interventions evaluate effects biomedical health related outcomes requires submission data bank supporting documents including protocol documents consent documents enroll subjects trial requires responsible party clinical trial submit clinical trial information data bank patient enrolled trial requires director national_institutes_of_health nih post information submitted data bank days submission determined meet quality criteria established director revises time frames reporting results data clinical trial registry requires director commissioner food_and_drugs fda report number clinical trials information submitted registry steps taken enforce compliance reporting requirements


Summary: Triple-Negative Breast Cancer Research and Education Act of 2011 [sic] - Requires the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate programs for the conduct and support of research on triple-negative breast cancer (breast cancers whose cells are negative for estrogen receptors, progesterone receptors, and the HER2 protein on their sources). Directs the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to develop and disseminate to the public information regarding triple-negative breast cancer, including information on: (1) the incidence and prevalence of such breast cancer among women, (2) the elevated risk for minority women, and (3) the availability of a range of treatment options. Requires the Secretary, acting through the Administrator of the Health Resources and Services Administration (HRSA), to develop and disseminate information on triple-negative breast cancer to health care providers.

triple negative breast cancer research education act sic requires director national_institutes_of_health nih expand intensify coordinate programs conduct support research triple negative breast cancer breast cancers cells negative protein sources directs secretary health_and_human_services hhs acting director centers_for_disease_control_and_prevention cdc develop disseminate public information triple negative breast cancer including information incidence prevalence breast cancer women elevated risk minority women availability range treatment options requires secretary acting administrator health_resources_and_services_administration hrsa develop disseminate information triple negative breast cancer health_care providers


Summary: Family Asthma Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to collaborate with state and local health departments to: (1) conduct activities regarding asthma, including deterring the harmful consequences of uncontrolled asthma, and disseminating health education and information regarding prevention of asthma episodes and strategies for managing asthma; and (2) develop state plans incorporating public health responses to reduce the burden of asthma, particularly regarding disproportionately affected populations. Revises and expands requirements for asthma surveillance activities. Requires the Director to coordinate data collection activities to maximize the comparability of results. Requires the Secretary to submit an assessment of current activities related to asthma prevention, management and surveillance along with recommendations for the future direction of asthma activities.

family asthma act_-_amends public_health_service_act require secretary health_and_human_services hhs acting director centers_for_disease_control_and_prevention cdc collaborate state local health departments conduct activities asthma including deterring harmful consequences uncontrolled asthma disseminating health education information prevention asthma strategies managing asthma develop state plans incorporating public health responses reduce burden asthma particularly disproportionately affected populations revises expands requirements asthma surveillance activities requires director coordinate data collection activities maximize comparability results requires secretary submit assessment current activities related asthma prevention management surveillance recommendations future direction asthma activities


Summary: Human Cloning Prohibition Act of 2012 - Amends the federal criminal code to prohibit any public or private person or entity, in or affecting interstate commerce, from: (1) performing or attempting to perform human cloning; (2) participating in an attempt to perform human cloning; or (3) shipping, receiving, or importing the product of human cloning for any purpose. Sets forth criminal and civil penalties for violations.Provides that nothing in this Act shall restrict areas of scientific research not specifically prohibited by this Act, including research in the use of nuclear transfer or other cloning techniques to produce molecules, DNA, cells other than human embryos, tissues, organs, plants, or animals other than humans.

human cloning prohibition act amends federal criminal code prohibit public private person entity affecting interstate commerce performing attempting perform human cloning participating attempt perform human cloning shipping receiving importing product human cloning purpose sets forth criminal civil penalties violations provides act shall restrict areas scientific research specifically prohibited act including research use nuclear transfer cloning techniques produce dna cells human tissues organs plants animals humans


Summary: National Office for Social Work Research Act - Amends the Public Health Service Act to establish the Office of Social Work Research in the National Institutes of Health (NIH) to conduct, support, and disseminate targeted research concerning social work methods and outcomes related to problems of significant social concern. Requires the Office to: (1) promote research and training to inform social work practices, and (2) provide policymakers with research to better understand complex social issues and make informed funding decisions about service effectiveness and cost efficiency. Sets forth duties of the Director of the Office, which shall include: (1) recommending an agenda for conducting and supporting social work research through the national research institutes and centers; (2) promoting coordination and cooperation among such institutes and centers; (3) promoting the sufficient allocation of NIH resources for such research; and (4) promoting and encouraging the establishment of a centralized clearinghouse for social work research to provide understandable information about this research to the public, social service professionals, medical professionals, patients, and families. Requires the Director to serve as the principal adviser to the Director of NIH and to provide advice to other relevant agencies. Authorizes the Director of the Office to enter into cooperative agreements with, and make grants to, public or private nonprofit entities to pay all or part of the cost of planning, establishing, or strengthening, and providing basic operating support for centers of excellence for clinical and psychosocial research, training in, and demonstration of social work research.

national office social work research act_-_amends public_health_service_act establish office social work research national_institutes_of_health nih conduct support disseminate targeted research concerning social work methods outcomes related problems significant social concern requires office promote research training inform social work practices provide policymakers research better understand complex social issues informed funding decisions service effectiveness cost efficiency sets forth duties director office shall include recommending agenda conducting supporting social work research national research institutes centers promoting coordination cooperation institutes centers promoting sufficient allocation nih resources research promoting encouraging establishment centralized clearinghouse social work research provide understandable information research public social service professionals medical professionals patients families requires director serve principal adviser director nih provide advice relevant agencies authorizes director office enter cooperative agreements grants public private nonprofit entities pay cost planning establishing strengthening providing basic operating support centers_of_excellence clinical psychosocial research training demonstration social work research


Summary: Ethical Stem Cell Research Tax Credit Act of 2011- Amends the Internal Revenue Code to allow a tax credit for 30% of qualified stem cell research expenses paid or incurred in a taxable year. Defines "qualified stem cell research expenses" as expenses for carrying out basic and applied research to develop techniques for the isolation, derivation, production, testing, and human clinical use of stem cells that may result in improved understanding of or treatments for diseases and other adverse health conditions. Prohibits a tax credit for any research expenses that may involve: (1) the creation of a human embryo for research purposes; (2) the destruction of or discarding of, or risk of injury to, a human embryo; or (3) the use of any stem cell for prohibited purposes.

ethical stem cell research tax credit act amends_the_internal_revenue_code allow tax credit qualified stem cell research expenses paid incurred taxable year defines qualified stem cell research expenses expenses carrying basic applied research develop techniques isolation production testing human clinical use stem cells result improved understanding treatments diseases adverse health conditions prohibits tax credit research expenses involve creation human embryo research purposes destruction risk injury human embryo use stem cell prohibited purposes


Summary: Scleroderma Research and Awareness Act - Requires the Director of the National Institute of Arthritis and Musculoskeletal and Skin Diseases to expand, intensify, and coordinate the Institute's activities with respect to scleroderma, with particular emphasis on: (1) research focused on the etiology of scleroderma and the development of new treatment options, (2) clinical research to evaluate new treatment options, (3) basic research on the relationship between scleroderma and secondary conditions, (4) establishment of scleroderma patient registries, and (5) support for training of new clinicians and investigators with expertise in scleroderma. Directs the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to carry out an educational campaign to increase public awareness of scleroderma.

research awareness act_-_requires director national institute musculoskeletal skin diseases expand intensify coordinate institute activities respect particular emphasis research focused development new treatment options clinical research evaluate new treatment options basic research relationship secondary conditions establishment patient registries support training new clinicians investigators expertise directs secretary health_and_human_services hhs acting director centers_for_disease_control_and_prevention cdc carry educational campaign increase public awareness


Summary: Citrus Disease Research and Development Trust Fund Act of 2011 - Amends the Trade Act of 1974 to establish the Citrus Disease Research and Development Trust Fund, consisting of revenues from duties paid on imported citrus or citrus products, to support scientific research, technical assistance, and development activities to combat both domestic and invasive citrus diseases and pests harming the United States. Establishes the Citrus Disease Research and Development Board. Makes Fund amounts available to the Board to develop a coordinated program of research and product development relating to: (1) scientific research of both domestic and invasive diseases and pests afflicting the citrus industry; and (2) support for the dissemination and commercialization of relevant information, techniques, and technologies discovered through Fund research or other research projects intended to solve problems caused by citrus production diseases and invasive pests. Requires the President to notify certain congressional committees before entering into a trade agreement that could result in a decrease in the amount of: (1) duties paid on imported citrus or citrus products; and (2) funds transferred into the Fund.

citrus disease research development trust_fund act amends trade act establish citrus disease research development trust_fund consisting revenues duties paid imported citrus citrus products support scientific research technical assistance development activities combat domestic invasive citrus diseases pests harming united_states establishes citrus disease research development board makes fund amounts available board develop coordinated program research product development relating scientific research domestic invasive diseases pests citrus industry support dissemination commercialization relevant information techniques technologies discovered fund research research projects intended solve problems caused citrus production diseases invasive pests requires president notify certain congressional committees entering trade agreement result decrease duties paid imported citrus citrus products funds transferred fund


Summary: Medicare IVIG Access Act - Directs the Secretary of Health and Human Services (HHS) to establish a demonstration project under title XVIII (Medicare) of the Social Security Act (SSA) to evaluate the benefits of providing payment for items and services needed for the administration, within the homes of Medicare beneficiaries, of intravenous immune globin (IVIG) for the treatment of primary immune deficiency diseases. Amends SSA title XVIII to treat as durable medical equipment (DME) any disposable drug delivery systems, including elastomeric infusion pumps, for the treatment of colorectal cancer.

medicare ivig access act_-_directs secretary health_and_human_services hhs establish demonstration project title xviii medicare social_security_act ssa evaluate benefits providing payment items services needed administration homes medicare beneficiaries intravenous immune ivig treatment primary immune deficiency diseases amends ssa title xviii treat durable medical equipment dme disposable drug delivery systems including infusion pumps treatment colorectal cancer


Summary: Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2011 - Authorizes the Director of the Centers for Disease Control and Prevention (CDC) to undertake psoriasis and psoriatic arthritis data collection efforts to collect information regarding: (1) the prevalence of psoriasis and psoriatic arthritis in the United States; (2) the age of onset; (3) health-related quality of life; (4) health care utilization; (5) the burden of such disease; (6) direct and indirect costs; (7) health disparities, including with respect to age, gender, race, and ethnicity; and (8) comorbidities and the natural history of such disease. Allows such data collection efforts to include: (1) incorporating questions into public health surveys, questionnaires, and other databases in existence as of the date of the enactment of this Act; and (2) the consideration and development of a patient registry. Encourages the Director of the National Institutes of Health to explore the development of a virtual Center of Excellence for Collaborative Discovery in Psoriasis and Comorbid Research or some other mechanism through which public and private sector findings regarding psoriasis and its comorbid conditions can be regularly shared and leveraged.

research cure care act authorizes director centers_for_disease_control_and_prevention cdc undertake data collection efforts collect information prevalence united_states age onset health related quality life health_care utilization burden disease direct indirect costs health disparities including respect age gender race ethnicity natural history disease allows data collection efforts include incorporating questions public health surveys databases existence date enactment act consideration development patient registry encourages director national_institutes_of_health explore development virtual center_of_excellence collaborative discovery research mechanism public private sector findings conditions regularly shared leveraged


Summary: Medical Innovation Prize Fund Act - Prohibits any person from having the right to exclusively manufacture, distribute, sell, or use in interstate commerce a drug, a biological product, or a drug or biological product manufacturing process, including the exclusive right to rely on health registration data or the 30-month stay-of-effectiveness period for Orange Book patents, notwithstanding provisions of U.S. patent law and other relevant statutes. Establishes remuneration in lieu of such market exclusivity. Establishes: (1) the Fund for Medical Innovation Prizes; and (2) a Board of Trustees for such Fund, which shall award prize payments for medical innovation and establish independent expert advisory committees. Directs the Board to award prize payments for medical innovation relating to a drug, a biological product, or a new manufacturing process for a drug or biological product to: (1) the first person to receive market clearance with respect to the drug or biological product; (2) the holder of the patent with respect to a manufacturing process; or (3) in the case of open source contributions, the persons or communities that openly shared knowledge, data, materials, and technology on a royalty-free and nondiscriminatory basis. Requires the Board to establish and periodically modify minimum levels of funding for such awards for priority research and development, including global neglected diseases, orphan diseases, and global infectious diseases and other global public health priorities. Allows the Board of Trustees to authorize multiple nonprofit intermediaries to reward projects for interim research and development of products or for open source dividend prizes Sets forth transitional rules. Requires the Comptroller General to conduct annual audits to determine the Board's effectiveness in bringing to market new drugs, vaccines, biological products, and manufacturing processes in a cost-effective manner and in addressing society's global medical needs. Establishes an annual fee for health insurers to fund this Act.

medical innovation prize fund act prohibits person having right exclusively manufacture distribute sell use interstate commerce drug biological product drug biological product manufacturing process including exclusive right rely health registration data month stay effectiveness period orange book patents notwithstanding provisions patent law relevant statutes establishes remuneration lieu market exclusivity establishes fund medical innovation prizes board_of_trustees fund shall award prize payments medical innovation establish independent expert advisory committees directs board award prize payments medical innovation relating drug biological product new manufacturing process drug biological product person receive market clearance respect drug biological product holder patent respect manufacturing process case open source contributions persons communities openly shared knowledge data materials technology royalty free nondiscriminatory basis requires board establish periodically modify minimum levels funding awards priority research development including global neglected diseases orphan diseases global infectious diseases global public health priorities allows board_of_trustees authorize multiple nonprofit intermediaries reward projects interim research development products open source dividend prizes sets forth transitional rules requires comptroller_general conduct annual audits determine board effectiveness bringing market new drugs vaccines biological products manufacturing processes cost effective manner addressing society global medical needs establishes annual fee health insurers fund act


Summary: Citrus Disease Research and Development Trust Fund Act of 2011 - Amends the Trade Act of 1974 to establish the Citrus Disease Research and Development Trust Fund, consisting of revenues from duties paid on imported citrus or citrus products, to support scientific research, technical assistance, and development activities to combat both domestic and invasive citrus diseases and pests harming the United States. Establishes the Citrus Disease Research and Development Trust Fund Advisory Board. Makes Fund amounts available to the Secretary of Agriculture to develop a coordinated program of research and product development relating to: (1) scientific research of both domestic and invasive diseases and pests afflicting the citrus industry; and (2) support for the dissemination and commercialization of relevant information, techniques, and technologies discovered through Fund research or other research projects intended to solve problems caused by citrus production diseases and invasive pests. Requires the President to notify certain congressional committees before entering into a trade agreement that could result in a decrease in the amount of: (1) duties paid on imported citrus or citrus products, and (2) funds transferred into the Fund.

citrus disease research development trust_fund act amends trade act establish citrus disease research development trust_fund consisting revenues duties paid imported citrus citrus products support scientific research technical assistance development activities combat domestic invasive citrus diseases pests harming united_states establishes citrus disease research development trust_fund advisory_board makes fund amounts available secretary agriculture develop coordinated program research product development relating scientific research domestic invasive diseases pests citrus industry support dissemination commercialization relevant information techniques technologies discovered fund research research projects intended solve problems caused citrus production diseases invasive pests requires president notify certain congressional committees entering trade agreement result decrease duties paid imported citrus citrus products funds transferred fund


Summary: Pulmonary Fibrosis Research Enhancement Act - Amends the Public Health Service Act to require the Director of the Centers for Disease Control and Prevention (CDC) to: (1) establish the National Pulmonary Fibrosis Advisory Board, (2) develop a system to collect data on pulmonary fibrosis and other interstitial lung diseases, and (3) establish the National PF Registry. Requires the Secretary of Health and Human Services (HHS), in developing the Registry, to: (1) expand and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure; and (2) provide for research access to pulmonary fibrosis data. Directs the Secretary to ensure that epidemiological and other types of information are made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA). Requires the Director of CDC to prepare the National Pulmonary Fibrosis Education and Awareness Plan, which shall: (1) focus on strategies to increase public education and awareness of pulmonary fibrosis, (2) address the need for new physician education strategies to improve diagnosis and treatment standards, and (3) assess and monitor the costs of pulmonary fibrosis and its burden on patients and families. Encourages the Director of the National Heart, Lung, and Blood Institute to expand, intensify, and coordinate Institute pulmonary fibrosis research activities.

pulmonary fibrosis research enhancement act_-_amends public_health_service_act require director centers_for_disease_control_and_prevention cdc establish national pulmonary fibrosis advisory_board develop system collect data pulmonary fibrosis lung diseases establish national registry requires secretary health_and_human_services hhs developing registry expand coordinate existing data surveillance systems surveys registries federal public health environmental infrastructure provide research access pulmonary fibrosis data directs secretary ensure epidemiological types information available national_institutes_of_health nih department_of_veterans_affairs requires director cdc prepare national pulmonary fibrosis education awareness plan shall focus strategies increase public education awareness pulmonary fibrosis address need new physician education strategies improve diagnosis treatment standards assess monitor costs pulmonary fibrosis burden patients families encourages director national_heart lung blood_institute expand intensify coordinate institute pulmonary fibrosis research activities


Summary: Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2011 - Requires the Secretary of Health and Human Services (HHS) to establish the Tick-Borne Diseases Advisory Committee. Requires the Committee to advise the Secretary and the Assistant Secretary for Health regarding the manner in which such officials can: (1) ensure interagency coordination and communication and minimize overlap regarding efforts to address tick-borne diseases; (2) identify opportunities to coordinate efforts with other federal agencies and private organizations addressing such diseases; (3) ensure interagency coordination and communication with constituency groups; (4) ensure that a broad spectrum of scientific viewpoints are represented in public heath policy decisions and that information disseminated to the public and physicians is balanced; and (5) advise relevant federal agencies on priorities related to Lyme and other tick-borne diseases. Directs the Committee to regularly review published public and private treatment guidelines and evaluate such guidelines for effective representation of a wide variety of views. Requires the Secretary, acting as appropriate through various federal officials, to provide for the coordination of all federal programs and activities related to Lyme and other tick-borne diseases and the conduct or support of specified activities, including: (1) developing sensitive and accurate diagnostic tools and tests, (2) improving the efficient utilization of diagnostic testing currently available; (3) surveillance and reporting of Lyme and other tick-borne diseases; (4) providing and promoting access to a clearinghouse of information on such diseases; (5) increasing public education related to such diseases; (6) creating a physician education program to educate health professionals on the latest research and diversity of treatment options for Lyme disease; (7) establishing epidemiological research objectives; and (8) determining the effectiveness of different treatment modalities.

lyme tick borne disease prevention education research_act requires secretary health_and_human_services hhs establish tick borne diseases advisory_committee requires committee advise secretary assistant secretary health manner officials ensure interagency coordination communication minimize overlap efforts address tick borne diseases identify opportunities coordinate efforts federal agencies private organizations addressing diseases ensure interagency coordination communication constituency groups ensure broad spectrum scientific viewpoints represented public heath policy decisions information disseminated public physicians balanced advise relevant federal agencies priorities related lyme tick borne diseases directs committee regularly review published public private treatment guidelines evaluate guidelines effective representation wide variety views requires secretary acting appropriate federal officials provide coordination federal programs activities related lyme tick borne diseases conduct support specified activities including developing sensitive accurate diagnostic tools tests improving efficient utilization diagnostic testing currently available surveillance reporting lyme tick borne diseases providing promoting access clearinghouse information diseases increasing public education related diseases creating physician education program educate health professionals latest research diversity treatment options lyme disease establishing epidemiological research objectives determining effectiveness different treatment modalities


Summary: Life Sciences Jobs and Investment Act of 2011 - Amends the Internal Revenue Code to allow: (1) an increased research tax credit for qualified initial life sciences research expenses; and (2) certain corporations a tax deduction for dividends received which are reinvested solely in the United States to hire scientists and researchers engaged in life science research, fund life science research at research consortia, eligible small businesses, universities, and federal laboratories, or build or lease new facilities to be used primarily for qualified life sciences research. Terminates such tax incentives after 2016. Defines "qualified initial life sciences research expenses" as amounts, up to $150 million, attributable to the study of biology, biochemistry, biophysics, bioengineering, microbiology, genetics, or physiology, but excluding sociology or psychology. Directs the Commissioner of Internal Revenue to take necessary steps to ensure full compliance with the provisions of this Act and to report to Congress on the status of such compliance and related enforcement.

life sciences jobs investment act amends_the_internal_revenue_code allow increased research tax credit qualified initial life sciences research expenses certain corporations tax deduction dividends received reinvested solely united_states hire scientists researchers engaged life science research fund life science research research consortia eligible small businesses universities federal laboratories build lease new facilities primarily qualified life sciences research terminates tax incentives defines qualified initial life sciences research expenses amounts million attributable study biology excluding psychology directs commissioner internal_revenue necessary steps ensure compliance provisions act report congress status compliance related enforcement


Summary: Trisomy 21 Research Centers of Excellence of 2011- Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development, to expand and intensify NIH programs with respect to research and related activities concerning Down syndrome. Requires the Director of NIH to publish a research plan on Down syndrome and update it every five years or as appropriate. Requires the Director of NIH to award grants and contracts to public or nonprofit private entities to pay all or part of the cost of planning, establishing, improving, and providing basic operating support for centers of excellence regarding translational research on Down syndrome. Sets forth requirements for such centers, which shall include: (1) contributing to a comprehensive research portfolio for Down syndrome, (2) having a primary focus on Down syndrome, (3) providing an optimal venue and infrastructure for patient-oriented research, and (4) conducting basic, clinical, and translational research on Down syndrome in specified areas. Authorizes the Director of NIH to establish a Down Syndrome Consortium to facilitate the exchange of information and to make the research effort on Down syndrome more efficient and effective.

research centers_of_excellence amends public_health_service_act require director national_institutes_of_health nih acting director eunice kennedy shriver national institute child health human development expand intensify nih programs respect research related activities concerning syndrome requires director nih publish research plan syndrome update years appropriate requires director nih award grants contracts public nonprofit private entities pay cost planning establishing improving providing basic operating support centers_of_excellence translational research syndrome sets forth requirements centers shall include contributing comprehensive research portfolio syndrome having primary focus syndrome providing optimal venue infrastructure patient oriented research conducting basic clinical translational research syndrome specified areas authorizes director nih establish syndrome consortium facilitate exchange information research effort syndrome efficient effective


Summary: Trisomy 21 Research Resource Act of 2011 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development, to expand and intensify NIH programs with respect to research and related activities concerning Down syndrome. Requires the Director of NIH to publish a research plan on Down syndrome and update it every five years or as appropriate. Authorizes the Director of NIH to: (1) conduct basic, clinical, and translational research on Down syndrome; (2) award a grant or contract for a registry of individuals with Down syndrome; (3) establish a database including the names, contact information, and each medical condition of individuals with Down syndrome; and (4) expand one or more tissue banks maintained or supported by NIH to identify any tissue harvested from a tissue donor with Down syndrome. Requires consent before including an individual's information in the registry, the database, or the tissue bank. Authorizes the Director of NIH to provide for the participation of NIH agencies in a consortium to facilitate the exchange of information and to make the research effort on Down syndrome more efficient and effective by ensuring consistent communication, minimizing duplication of effort, and integrating the varied perspectives of partner agencies, organizations, and individuals. Authorizes the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) award grants and cooperative agreements for the collection, analysis, and reporting of data on Down syndrome; and (2) carry out epidemiological activities regarding Down syndrome.

research resource act amends public_health_service_act require director national_institutes_of_health nih acting director eunice kennedy shriver national institute child health human development expand intensify nih programs respect research related activities concerning syndrome requires director nih publish research plan syndrome update years appropriate authorizes director nih conduct basic clinical translational research syndrome award grant contract registry individuals syndrome establish database including names contact information medical condition individuals syndrome expand tissue banks maintained supported nih identify tissue harvested tissue donor syndrome requires consent including individual information registry database tissue bank authorizes director nih provide participation nih agencies consortium facilitate exchange information research effort syndrome efficient effective ensuring consistent communication minimizing duplication effort integrating varied perspectives partner agencies organizations individuals authorizes secretary acting director centers_for_disease_control_and_prevention cdc award grants cooperative agreements collection analysis reporting data syndrome carry epidemiological activities syndrome


Summary: Collaborative Academic Research Efforts for Tourette Syndrome Act of 2012 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate NIH programs and activities regarding Tourette syndrome. Requires the Director to develop a system to collect data on Tourette syndrome, including epidemiological information regarding its incidence and prevalence in the United States, primary data, and data on the availability of medical and social services for individuals with Tourette syndrome and their families. Requires the Director to award grants and contracts to public or nonprofit private entities to pay costs of planning, establishing, improving, and providing basic operating support for between four and six centers of excellence in different regions of the United States to conduct basic and clinical research on Tourette syndrome. Requires the Secretary to designate a portion of the amounts made available to carry out NIH programs and activities for a fiscal year to carry out programs and activities with respect to Tourette syndrome.

collaborative academic research efforts syndrome act amends public_health_service_act require director national_institutes_of_health nih expand intensify coordinate nih programs activities syndrome requires director develop system collect data syndrome including epidemiological information incidence prevalence united_states primary data data availability medical social_services individuals syndrome families requires director award grants contracts public nonprofit private entities pay costs planning establishing improving providing basic operating support centers_of_excellence different regions united_states conduct basic clinical research syndrome requires secretary designate portion amounts available carry nih programs activities fiscal year carry programs activities respect syndrome


Summary: Health Equity and Accountability Act of 2012 - Amends the Public Health Service Act and the Social Security Act to expand the collection and analysis of data in programs of the Department of Health and Human Services (HHS). Sets forth provisions to improve cultural competence in federal health care programs and services, including by establishing the Robert T. Matsui Center for Cultural and Linguistic Competence in Health Care. Requires the Secretary of Health and Human Services (Secretary) to engage in activities to improve health workforce diversity, including by: (1) establishing a working group, a technical clearinghouse, and an advisory committee on workforce diversity; (2) awarding grants to academic institutions; (3) establishing a health and health care disparities education program; and (4) providing for scholarships, student loan repayment and loan forgiveness, and research fellowships. Health Empowerment Zone Act of 2012 - Provides for the establishment of health empowerment zones in communities that experience disproportionate disparities in health status and health care. Requires the Secretary to engage in activities to improve the quality of and access to health care, including by expanding access to health care and health care insurance for immigrants, designating centers of excellence at public hospitals and other health systems serving minority patients, increasing Medicaid payments to territories and to Native Hawaiian health centers, and providing for border health grants. Sets forth programs to reduce health disparities affecting minorities and rural residents. Establishes an Office of Minority Health in the Department of Veterans Affairs (VA). Sets forth provisions to improve health for women and children, including by expanding access to federal programs for immigrant women and children, creating public awareness campaigns, engaging in activities to eliminate disparities in maternal health outcomes, and establishing programs to reduce teenage pregnancies, including contraception education and information programs and programs to support healthy adolescent development. Directs the Secretary to develop a multisite gestational diabetes research project within the diabetes program of the Centers for Disease Control and Prevention (CDC). Provides for community mental health and addiction services to be offered through federally-qualified behavioral health centers. Lung Cancer Mortality Reduction Act of 2012 - Requires the Secretary to implement the Lung Cancer Mortality Reduction Program to achieve a reduction of at least 25% in the mortality rate of lung cancer by 2017. Prostate Research, Outreach, Screening, Testing, Access, and Treatment Effectiveness Act of 2012 or the PROSTATE Act - Requires the Secretary of Veterans Affairs (VA) to take action to address prostate cancer, including by establishing the Interagency Prostate Cancer Coordination and Education Task Force. Viral Hepatitis and Liver Cancer Control and Prevention Act of 2012 - Requires the Secretary to implement programs to address hepatitis B and hepatitis C. Bone Marrow Failure Disease Research and Treatment Act of 2012 - Requires the Director of CDC to establish the National Acquired Bone Marrow Failure Disease Registry. Requires the Director of the Agency for Healthcare Research and Quality to develop guidelines to screen minority patient populations which have a higher than average risk for many chronic diseases and cancers. Establishes a program for participation by Medicaid beneficiaries in approved clinical trials. Requires the Secretary to carry out activities to expand the Minority HIV/AIDS Initiative. National Black Clergy for the Elimination of HIV/AIDS Act of 2012 - Provides for a program of grants to public health agencies and faith-based organizations to address HIV/AIDS in the African-American community. Justice for the Unprotected Against Sexually Transmitted Infections among the Confined and Exposed Act or the JUSTICE Act - Permits community organizations to distribute sexual barrier protection devices (e.g., condoms) and to engage in sexually transmitted infection counseling and prevention education in federal correctional facilities. Stop AIDS in Prison Act of 2012 - Requires the Bureau of Prisons to develop a comprehensive policy to provide HIV testing, treatment, and prevention for inmates. Minority Diabetes Initiative Act - Requires the Secretary to award grants to provide treatment for diabetes in minority communities and to conduct and support research and other activities with respect to diabetes in minority populations. Directs the Secretary to conduct research and other activities for the prevention of lung diseases, including asthma, pneumonia, and chronic obstructive pulmonary diseases. Sets forth provisions regarding the use of health information technology to reduce health disparities, particularly in racial and ethnic minority communities. Prohibits discrimination in federal health care programs or research activities. Requires the Secretary to establish the Office of Health Disparities in the Office for Civil Rights and to establish civil rights compliance offices in each HHS agency that administers health programs. Directs the President to enforce Executive Order 12898 (requiring federal actions to address environmental justice in minority and low-income populations) as federal law. Amends the Department of Agriculture Reorganization Act of 1994 to establish in the Department of Agriculture (USDA) a Healthy Food Financing Initiative. Directs the Comptroller General (GAO) to study the type and scope of health care services provided to racial and ethnic minorities affected by the explosion of the Deepwater Horizon drilling unit on April 20, 2010.

health equity accountability_act amends public_health_service_act social_security_act expand collection analysis data programs department_of_health_and_human_services hhs sets forth provisions improve cultural competence federal health_care programs services including establishing robert center cultural linguistic competence health_care requires secretary health_and_human_services secretary engage activities improve health workforce diversity including establishing working_group technical clearinghouse advisory_committee workforce diversity awarding grants academic institutions establishing health health_care disparities education program providing scholarships student loan repayment loan forgiveness research fellowships health empowerment zone act provides establishment health empowerment zones communities experience disproportionate disparities health status health_care requires secretary engage activities improve quality access health_care including expanding access health_care health_care insurance immigrants designating centers_of_excellence public hospitals health systems serving minority patients increasing medicaid payments territories native hawaiian health centers providing border health grants sets forth programs reduce health disparities affecting minorities rural residents establishes office_of_minority_health department_of_veterans_affairs sets forth provisions improve health women children including expanding access federal programs immigrant women children creating public awareness campaigns engaging activities eliminate disparities maternal health outcomes establishing programs reduce teenage pregnancies including contraception education information programs programs support healthy adolescent development directs secretary develop multisite gestational diabetes research project diabetes program centers_for_disease_control_and_prevention cdc provides community mental health addiction services offered federally qualified behavioral health centers lung cancer mortality reduction act requires secretary implement lung cancer mortality reduction program achieve reduction mortality rate lung cancer prostate_research outreach screening testing access treatment effectiveness act prostate act_-_requires secretary veterans_affairs action address prostate cancer including establishing interagency prostate cancer coordination education task_force viral hepatitis liver cancer control prevention act requires secretary implement programs address hepatitis hepatitis bone marrow failure disease research treatment act requires director cdc establish national acquired bone marrow failure disease registry requires director agency healthcare_research_and_quality develop guidelines screen minority patient populations higher average risk chronic diseases cancers establishes program participation medicaid beneficiaries approved clinical trials requires secretary carry activities expand minority hiv aids initiative national black elimination hiv aids act provides program grants public health agencies faith based organizations address hiv aids african american community justice sexually transmitted infections confined exposed act justice act permits community organizations distribute sexual barrier protection devices engage sexually transmitted infection counseling prevention education federal correctional facilities stop aids prison act requires bureau_of_prisons develop comprehensive policy provide hiv testing treatment prevention inmates minority diabetes initiative act_-_requires secretary award grants provide treatment diabetes minority communities conduct support research activities respect diabetes minority populations directs secretary conduct research activities prevention lung diseases including asthma chronic obstructive pulmonary diseases sets forth provisions use health information technology reduce health disparities particularly racial ethnic minority communities prohibits discrimination federal health_care programs research activities requires secretary establish office health disparities office civil rights establish civil rights compliance offices hhs agency administers health programs directs president enforce executive order requiring federal actions address environmental justice minority low income populations federal law amends department_of_agriculture_reorganization_act establish department_of_agriculture usda healthy food financing initiative directs comptroller_general gao study type scope health_care services provided racial ethnic minorities affected explosion deepwater_horizon drilling unit april


Summary: National Pediatric Research Network Act of 2012 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development and in collaboration with other appropriate national research institutes and national centers that carry out activities involving pediatric research to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award cooperative agreements and grants to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including for pediatric research needs and training. Authorizes the Director to make awards for not more than 20 pediatric research consortia. Requires the Director to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions; and (3) disseminate trial findings. Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; (3) organize and conduct multi-site monitoring activities; (4) provide assistance to the Centers for Disease Control and Prevention (CDC) in the establishment of patient registries; and (5) report regularly on consortia research.

national pediatric research network act amends public_health_service_act authorize director national_institutes_of_health nih carrying pediatric research initiative act director eunice kennedy shriver national institute child health human development collaboration appropriate national research institutes national centers carry activities involving pediatric research provide establishment national pediatric research network authorizes director institute award cooperative agreements grants public private nonprofit entities planning establishing strengthening pediatric research consortia providing basic operating support consortia including pediatric research needs training authorizes director awards pediatric research consortia requires director provide coordination activities consortia require periodic preparation submission reports activities requires director nih ensure appropriate number awards awarded consortia agree focus primarily pediatric rare diseases conditions conduct coordinate multi site clinical trials therapies approaches prevention diagnosis treatment pediatric rare diseases conditions disseminate trial findings requires director nih establish data coordinating center distribute findings provide assistance design conduct collaborative research projects management analysis storage data associated projects organize conduct multi site monitoring activities provide assistance centers_for_disease_control_and_prevention cdc establishment patient registries report regularly consortia research


Summary: Recalcitrant Cancer Research Act of 2012 - Amends the Public Health Service Act to require the Director of the National Cancer Institute (NCI) to develop a scientific framework for research on recalcitrant cancers (cancer with a 5-year relative survival rate below 50%), which includes: (1) a review of the status of research, such as a summary of findings, identification of promising scientific advances, a description of the availability of qualified scientific researchers, and the identification of resources available to facilitate research; (2) identification of research questions that have not been adequately addressed; and (3) recommendations for actions to advance research and for appropriate benchmarks to measure progress on achieving such actions. Requires the Director to develop the framework within 18 months and review and update it every 5 years. Requires the Director to identify within 6 months 2 or more recalcitrant cancers that have a 5-year relative survival rate of less than 20%, and are estimated to cause the death of at least 30,000 individuals in the United States per year. Authorizes the Director to identify additional such cancers and to consider additional metrics of progress (such as incidence and mortality rates) against such cancer. Requires the Director to convene a working group for each identified cancer to provide expertise on, and assist in developing, a scientific framework under this Act. Requires the Director to consider each relevant scientific framework developed under this Act when making recommendations for exception funding for grant applications.

cancer research_act amends public_health_service_act require director national_cancer_institute develop scientific framework research cancers cancer year relative survival rate includes review status research summary findings identification promising scientific advances description availability qualified scientific researchers identification resources available facilitate research identification research questions adequately addressed recommendations actions advance research appropriate benchmarks measure progress achieving actions requires director develop framework months review update years requires director identify months cancers year relative survival rate estimated cause death individuals united_states year authorizes director identify additional cancers consider additional metrics progress incidence mortality rates cancer requires director convene working_group identified cancer provide expertise assist developing scientific framework act requires director consider relevant scientific framework developed act making recommendations exception funding grant applications


Summary: Family Asthma Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to collaborate with state and local health departments to: (1) conduct activities regarding asthma, including deterring the harmful consequences of uncontrolled asthma, and disseminating health education and information regarding prevention of asthma episodes and strategies for managing asthma; and (2) develop state plans incorporating public health responses to reduce the burden of asthma, particularly regarding disproportionately affected populations. Revises and expands requirements for asthma surveillance activities. Requires the Director to coordinate data collection activities to maximize the comparability of results. Requires the Secretary to submit an assessment of current activities related to asthma prevention, management and surveillance along with recommendations for the future direction of asthma activities.

family asthma act_-_amends public_health_service_act require secretary health_and_human_services hhs acting director centers_for_disease_control_and_prevention cdc collaborate state local health departments conduct activities asthma including deterring harmful consequences uncontrolled asthma disseminating health education information prevention asthma strategies managing asthma develop state plans incorporating public health responses reduce burden asthma particularly disproportionately affected populations revises expands requirements asthma surveillance activities requires director coordinate data collection activities maximize comparability results requires secretary submit assessment current activities related asthma prevention management surveillance recommendations future direction asthma activities


Summary:
Triple-Negative Breast Cancer Research and Education Act of 2013 - Requires the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate programs for the conduct and support of research on triple-negative breast cancer (breast cancers whose cells are negative for estrogen receptors, progesterone receptors, and the HER2 protein on their sources).

Directs the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to develop and disseminate to the public information regarding triple-negative breast cancer, including information on: (1) the incidence and prevalence of such breast cancer among women, (2) the elevated risk for minority women, and (3) the availability of a range of treatment options.

Requires the Secretary, acting through the Administrator of the Health Resources and Services Administration (HRSA), to develop and disseminate information on triple-negative breast cancer to health care providers.

triple negative breast cancer research education act requires director national_institutes_of_health nih expand intensify coordinate programs conduct support research triple negative breast cancer breast cancers cells negative protein sources directs secretary health_and_human_services hhs acting director centers_for_disease_control_and_prevention cdc develop disseminate public information triple negative breast cancer including information incidence prevalence breast cancer women elevated risk minority women availability range treatment options requires secretary acting administrator health_resources_and_services_administration hrsa develop disseminate information triple negative breast cancer health_care providers


Summary:
Medical Checklist Act of 2013 - Requires the Director of the Agency for Healthcare Research and Quality, acting through the Center for Quality Improvement and Patient Safety, to conduct a study on the development and efficacy of medical checklists, including: (1) the testing of different models of medical checklists, (2) an examination of checklist development and use in other industries, and (3) a measurement of the effects of the use of medical checklists on patient safety and health outcomes. Requires dissemination of the results of such study to patient safety organizations. Defines "medical checklist" as a predetermined, evidence-based, well-defined set of steps that should be completed during a designated medical clinical encounter or medical procedure.

Requires the Health IT Policy Committee to develop policy recommendations regarding: (1) the extent to which the use of medical checklists should be incorporated into health information technology systems, and (2) measures to determine the effectiveness of such use.

Requires the Secretary to enter into an agreement with the Institute of Medicine and the National Academy of Engineering to conduct a study on medical checklists that includes: (1) a review of available medical checklists and similar quality improvement techniques, (2) an identification of areas of research needed to improve medical checklists, (3) an analysis of organizational impediments to the adoption and use of medical checklists, and (4) a determination of whether the availability of an increased number of medical checklists would improve patient safety and health outcomes.

medical checklist act requires director agency healthcare_research_and_quality acting center quality improvement patient safety conduct study development efficacy medical checklists including testing different models medical checklists examination checklist development use industries measurement effects use medical checklists patient safety health outcomes requires dissemination results study patient safety organizations defines medical checklist predetermined evidence based defined set steps completed designated medical clinical encounter medical procedure requires health policy committee develop policy recommendations extent use medical checklists incorporated health information technology systems measures determine effectiveness use requires secretary enter agreement institute_of_medicine national_academy_of_engineering conduct study medical checklists includes review available medical checklists similar quality improvement techniques identification areas research needed improve medical checklists analysis organizational impediments adoption use medical checklists determination availability increased number medical checklists improve patient safety health outcomes


Summary:
Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate NIH programs and activities regarding Tourette syndrome.

Requires the Director to develop a system to collect data on Tourette syndrome, including epidemiological information regarding its incidence and prevalence in the United States, primary data, and data on the availability of medical and social services for individuals with Tourette syndrome and their families.

 Requires the Director to award grants and contracts to public or nonprofit private entities to pay costs of planning, establishing, improving, and providing basic operating support for between four and six centers of excellence in different regions of the United States to conduct basic and clinical research on Tourette syndrome.

Requires the Director to designate a portion of the amounts made available to carry out NIH programs and activities for a fiscal year to carry out programs and activities with respect to Tourette syndrome.

collaborative academic research efforts syndrome act amends public_health_service_act require director national_institutes_of_health nih expand intensify coordinate nih programs activities syndrome requires director develop system collect data syndrome including epidemiological information incidence prevalence united_states primary data data availability medical social_services individuals syndrome families requires director award grants contracts public nonprofit private entities pay costs planning establishing improving providing basic operating support centers_of_excellence different regions united_states conduct basic clinical research syndrome requires director designate portion amounts available carry nih programs activities fiscal year carry programs activities respect syndrome


Summary:
(This measure has not been amended since it was introduced. The summary of that version is repeated here.)

National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to provide for the establishment of a National Pediatric Research Network.

Authorizes the Director of the Institute to award funding to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including to meet unmet needs for pediatric research through basic, clinical, behavioral, or translational research and the training of researchers in pediatric research techniques. Authorizes the Director of NIH to make awards for not more than 20 pediatric research consortia, which must be formed from a collaboration of cooperating institutions, coordinated by a lead institution, agree to disseminate scientific findings, and meet requirements prescribed by the Director of NIH. Allows such support to be for a period of five years, with additional extensions at the discretion of the Director of NIH.

Requires the Director of NIH to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires each pediatric research consortium receiving an award to assist the Centers for Disease Control and Prevention (CDC) in the establishment or expansion of patient registries and other surveillance systems as appropriate and upon request by the CDC.

Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; and (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions.

Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; and (3) organize and conduct multi-site monitoring activities.

Requires the Director of NIH to: (1) require the data coordinating center to provide regular reports to the Director of NIH and the Commissioner of Food and Drugs (FDA) on research conducted by consortia, including information on enrollment in clinical trials and the allocation of resources with respect to such research; and (2) incorporate such information into NIH's biennial reports.

measure amended introduced summary version repeated national pediatric research network act amends public_health_service_act authorize director national_institutes_of_health nih carrying pediatric research initiative act director eunice kennedy shriver national institute child health human development provide establishment national pediatric research network authorizes director institute award funding public private nonprofit entities planning establishing strengthening pediatric research consortia providing basic operating support consortia including meet unmet needs pediatric research basic clinical behavioral translational research training researchers pediatric research techniques authorizes director nih awards pediatric research consortia formed collaboration cooperating institutions coordinated lead institution agree disseminate scientific findings meet requirements prescribed director nih allows support period years additional extensions discretion director nih requires director nih provide coordination activities consortia require periodic preparation submission reports activities requires pediatric research consortium receiving award assist centers_for_disease_control_and_prevention cdc establishment expansion patient registries surveillance systems appropriate request cdc requires director nih ensure appropriate number awards awarded consortia agree focus primarily pediatric rare diseases conditions conduct coordinate multi site clinical trials therapies approaches prevention diagnosis treatment pediatric rare diseases conditions requires director nih establish data coordinating center distribute findings provide assistance design conduct collaborative research projects management analysis storage data associated projects organize conduct multi site monitoring activities requires director nih require data coordinating center provide regular reports director nih commissioner food_and_drugs fda research conducted consortia including information enrollment clinical trials allocation resources respect research incorporate information nih biennial reports


Summary:
Neuromyelitis Optica Consortium Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish, administer, and coordinate a National Neuromyelitis Optica (NMO) Consortium to: (1) award grants of not fewer than five years duration to conduct research with respect to the causes of, and the risk factors and biomarkers associated with, NMO (a neurological disease leading to blindness and paralysis); (2) assemble a panel of experts to provide ongoing guidance and the recommendations on research design and protocols, and (3) designate a central laboratory to collect, analyze, and aggregate data with respect to such research and to make such data and analysis available to researchers.

Establishes eligibility requirements for a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities), including that: (1) it has the capability to enroll a minimum of 25 individuals with a diagnosis of NMO as research participants from the designated catchment area (geographical area), and (2) that the catchment area does not overlap with any other consortium receiving a grant under this Act.

consortium act_-_amends public_health_service_act require director national_institutes_of_health nih establish administer coordinate national consortium award grants fewer years duration conduct research respect causes risk factors biomarkers associated neurological disease leading blindness paralysis assemble panel experts provide ongoing guidance recommendations research design protocols designate central laboratory collect analyze aggregate data respect research data analysis available researchers establishes eligibility requirements consortium partnership universities health_care organizations government agencies combination entities including capability enroll minimum individuals diagnosis research participants designated area geographical area area overlap consortium receiving grant act